Update with MGH - Transplant Evaluation 1
I don’t even know where to begin or to explain it’s still all so new and still so confusing. I had my first evaluation for transplant candidacy on August 7th (still waiting on the schedule for part two). These appointment days are longer and more exhausting, overwhelming, overloading. I could go on and on about it but I won’t because that in itself is exhausting. My brain feels foggy af and words are harder to remember, it’s a really weird feeling, I use to be so quick and sharp… oh and such a smart ass. I think the hard part is watching these things fade away as I grow weaker by the day. But, I'm still managing on getting by each day. Positivity and projects have kept me going. My evaluation day was long, 8:30 AM to 4:00 PM an hour lunch, back to a different doctor, then to the lab that’s on the other side of the hospital (I’ve only seen one wing of Mass General Hospital and I’d get lost af in there) then ba...